Thursday, August 13, 2009

Does Healthcare Ever Cross Your Mind?

Ah…the healthcare “debate.” When I think of debates, I envision civil, enlightened discussions where many facets of an issue are smartly discussed. Maybe over a Sam Adams with a toast to our founding fathers. What’s going on right now is more of a Health Care Town Hall Cage Match between crazy people and gassy-looking legislators. But I digress from my real point…

I’m always a fan of taking a particular thought that just pops into my head and throwing it out there for discussion. I may be wrong and my logic might be flawed or inconsistent with my typical philosophy. Oh well.

Honestly, in this case, the subject just makes my head hurt so much that there’s only so much deep thought I can give it. Here’s the deal: We use public funds, both federal and state, to protect our borders (military) and protect our cities and property (police and fire departments), right? And we are generally mandated to carry insurance on our vehicles for the monetary protection of the banks (unless your car is paid off) and the general public we may run over, right?

But my daughter’s life – for the rest of her life – is far more endangered by a lack of access to affordable healthcare and medicine than she is endangered by the statistical likelihood of a house fire.

We use taxes for fire departments that provide physical protection for our population at large. Please tell me how healthcare is different? Frankly, I’d rather know with an absolute guarantee that she’ll have access to exactly the kind of diabetes care she receives today for the rest of her life and take my chances with St. Catherine, smoke detectors and a water hose.

Sunday, August 9, 2009

Dog & Butterfly

If only! Worked in the garden for a big part of the day yesterday. Things actually grow here. Things that aren't lantana, purple sage, red yucca and rosemary. Things with big, pretty flowers that come back year after year. This is quite new to me. But the pests! I don't have to worry about rattlesnakes, which were prevalant at the old place, but here's a little laundry list of what I'm battling this year: rabbits, chipmunks, japanese beetles, odd mold, violets on steroids and mushrooms of every nasty texture and color.

Sunday, July 19, 2009

Nature calls...

Apparently I have developed Seasonal Blogging Disorder. Start of baseball season and no more posts. Coincidence?

Between product launches and NESN, the garden and the grill, just when is a girl supposed to write? (I ask that rhetorical knowing my friends Jane (@kovacsjane for twitterers) and David (@dbschlosser) would have all kinds of excellent suggestions. Seriously, they’re phenomenally dedicated.)

Now, I don’t think I get SAD in the winter here in New England. And I know for a fact I would be sad to have to live in TX again, despite all my nice friends and family there… So it’s not that I’m a so-depressed-I’ve-got-to-share-my-angst-with-the-world-in-the-dead-of-winter writer. I think it’s more an issue of being easily distracted.

And my topics of choice – let’s see – the Sox are not really providing any juicy material. Record is good, some excellent games and individual performances here and there, but I’m not seeing the fire and brimstone raining down on opponents. Having Remy out of the booth is a diminishing factor in the televised games, for sure. The rest of my Sox thoughts can be very easily summed up: the Lugo days are likely behind us, Penny is not nearly as shiny as Theo must have thought, I’m warming up to Nick Green, and I’m kind of obsessed with the fact that Jacoby’s at bat song is Let it Rock.

We’re in a doldrums with the big D. I find a tremendous amount of guilt with the fact that I’m simply not wired and our schedule isn’t amenable to serving meals at precisely the same time every day (despite trying very hard to get close to a routine) and that’s something that seems like it would be a big positive for her A1C. She has started working out like an Olympic athlete and that is definitely helping the sugar levels and making her feel empowered. So that’s actually a step in the right direction.

But mainly the summertime here is just so unbelievable, the weekends truly feel like a vacation and after work you just want to go sit outside because you can, if for no other reason. It’s hard to stay at the computer any longer than necessary. I’m distracted now sitting by my open office window. My daylily garden needs a bit of clean up and it looks like there may be some nice new rose blooms ready to come inside and find a vase. And I think I’ll go check that out before rousing the kids to get ready for the beach.

Tuesday, April 7, 2009

Opportunity - use it or lose it

I'm taking advantage of North Carolina's victory to post one of my favorite pictures of all time.

Now let's Play Ball.

Friday, March 13, 2009

I should be more meek

I really prefer fun and light hearted. It’s so much easier for everybody. But something has come up today and I have to turn to my dark side, even though there are so many good people out there (with very eloquent writing skills) who want to help save us all, especially from our misguided moral positions. Must be that damned Friday the 13th.

So here is an open letter to the small handful of nice folks commenting on a few blogs today, decrying democratic strategist (you know, of course he’s a democrat!) Joe Trippi’s statement that he and the 23+ million Americans with diabetes are thrilled with the lifting of the stem cell research restrictions.

I know you’ll step away from the cure when it’s discovered. Of course, no one will take down names or refuse you or your children the opportunity for treatment, because that would be wrong. We’ll just rely on your ability to stick to your very clear and steadfast principles and do what’s right. Show the rest of us how it’s done.

I'm envious. Life must be so easy when you know you’re on the path to righteousness. Let me ask, though, so I’m clear on the amazing extent of your morally victorious position: how often do you visit murderers and rapists in prison to spread the Good Word and provide comfort? Or provide a meal for that dirty panhandler with the cardboard sign at the busiest intersection in town? Or go to the seedy side of downtown late at night and distribute warm coats to the prostitutes? I know you are all following these corporal works of mercy and setting the best possible example for the rest of us, many of us your fellow Parishoners, for whom things aren’t so crystal.

I sure hope I can be forgiven, because I want so very desperately to see a cure for my little girl. Wow – apparently enough to condone the “killing” of another “child” though gosh, it sure doesn’t feel that way in my heart of hearts. Please pray for me. I know 100% I’ll have to pray for forgiveness for today’s display of snarkiness and anger. But I will also pray that you never have to tell your child they must endure the life sentence of diabetes.

Tuesday, March 10, 2009

Mama's a Pack Rat


I have a new way to feed my compulsive stockpiling, which extends to winter gloves, toilet paper and Swiffer refills, Eggos, and throw rugs, among other items: the laying in of diabetes supplies. We are insanely lucky to have a great insurance company - one who sees the upside in allowing testing up to 10+ times a day and provides enough needle tips to allow multiple corrections beyond the prescribed 4 shots a day. It means we have the all the tools and that keeping blood sugars in just the right range is somewhat realistic.

But make no mistake - I religiously make a note on the calendar and call for refills the first possible day they'll be approved. Here and there, I've managed to build up a little arsenal of leftovers in my kitchen cabinet and fridge door. Sometimes just looking at the inventory makes me feel like I have the upper hand.

Saturday, February 14, 2009

Good parenting

I frequently tell my kids, "Keep it up! And see where that gets you."

"Nothing in the world can take the place of persistence. Talent will not; nothing is more common than unsuccessful men with talent. Genius will not; unrewarded genius is almost a proverb. Education will not; the world is full of educated derelicts. Persistence and determination alone are omnipotent."-- Calvin Coolidge

Friday, February 13, 2009

An old Caballo, a Strawberry Roan...

My mom and stepdad lived out in the country between Hutto and Taylor before they emigrated to Canada. They had horses, dogs, a donkey named Jackson and a rabbit. While they were frequently traveling back and forth between TX and British Columbia preparing for the move, my sister and I would help with the beasts.

One of the horses was my stepdad’s beloved strawberry roan named Deuce and he was pushing 30. A few weeks before one of their trips, Deuce had a time of "general unwellness" but seemed to perk up, so all systems were go. As my sister coordinated our animal feeding schedule with Mom, she let this gem slip: “That horse had better not die on my day!”

Well…one can see where this is going. We switched off minding the zoo for a few days and then one evening after work as she swung open the gate and started down the ¼ mile road to their house, something was definitely wrong. Deuce was down on his side as close to the house as the fence would allow and clearly not well. There was an immediate flurry of calls to me, to the vet and to Mom and Donald’s obviously unoccupied hotel room. This was before eveyone carried a cell and they were totally incommunicado.

He stared up at her helplessly and she was heartbroken and panicked. Finally, near dusk, the vet pulled up in his truck with all manner of supplies and told her what she already knew – that she had to let the big guy go and that if it made it any easier for her, he thought the knowing animal probably waited until Donald was gone to take leave.

I finally drove up just as the vet was leaving. By then it was dark and here we are at night, in the country with an obvious problem on our hands. We're girls who have lived in the city much too long to deal with this. Fact is, we always liked that Hank Williams Jr song about Country Boys because my dad made sure that we too could skin a deer, shoot a rifle, run a trot line, and start a fire. But nowhere in that song or our experience was there any instruction on what to do about a dead horse in your mom’s yard.

What ensued was equal parts hysteria and sound decision making. As I recall, I think we probably covered him, but I can't totally remember. I know vultures were an overriding concern. We called the vet back and asked for advice "What, in your experience, have people generally done in this situation?" He had nothing to offer. Well, this may have been Texas pasture, but 13 acres was no King Ranch and just leaving the animal out in the open was not an option. For many reasons, but number one that this was a member of the family, the die was cast. There would be a graveside service.

It was clear that we couldn't dig 6 inches, let alone 6 feet so I took charge of finding and hiring a Bobcat operator (for the tidy sum of $400) to come out and play undertaker. My sister used her lunch hour for the Callahan's errand and said they were obviously very concerned about why this pushy lady in a power suit was in their feedstore shopping for lime. (Was she plotting to kill an errant husband - would she kill them if they inquired?) She stopped by HEB on the way out of town for a basket of mums and we met the Bobcat owner to discuss the prime location.

It didn't take long at all to dig. He tied the lead rope around the horse's feet and pulled the big fella into his resting spot near the barn - a little deeper than the typical 6 feet - and covered him. We stuck the flowers down in the dirt and the donkey climbed up to the top of the mound and ate all of the mums so that there were only what amounted to a bunch of sticks left poking up. (He sadly stood on top of the mound for weeks afterward.) After a little prayer and leaving a small braid of Deuce's mane on the kitchen island, we drove down the road, got out to secure the main gate, had a Wonder Twins Activate moment and made a mad dash for the suburbs.

Wednesday, February 11, 2009

Golfers on the Juice?

I have two rather obsessive thoughts lately. One is whether or not a change in juice drinking habits could signal Type 1 or DKA. My daughter went from never drinking juice to specifically insisting that I buy it and drinking a up to a 1/2 gallon or more in a single day in the couple of weeks leading to her diagnosis. She specifically wanted juice, not necessarily water. This article caught my attention because Ray Allen's baby was also specifically asking for juice and it wasn't typical. I've heard this anecdote several different times. I wonder if it is truly a warning sign, in addition to general thirst. Warning signs are so important and maybe a caregiver seeing "one more" on the list would be prompted to quicker action.

The second quest for information was also promted by the article. The concept of a diabetes cluster totally freaks me out and yet does not seem implausible. If there really is an environmental trigger that sets off the latent genetic/auto-immune reaction, it stands to reason that it could affect multiple people in a small geography. I'm intensely looking for information on golf course proximity, as we lived for 2 years not more than 50 yards from a 15th hole and my daughter frequently played on the course at dusk. Any ideas out there?

Friday, February 6, 2009

Prime the Margarita Machine

Buffett tickets on sale tomorrow and Pitchers/Catchers next week. Yep - Spring's gotta be around the corner.

Tuesday, February 3, 2009

Amazing Grace

My company is embracing all forms of social media. So keeping an eye on Twitter along with email is not a crime. It’s great to see in real time what is interesting to industry analysts, journalists, and all-around technologists and have a new way to connect with them. And of course, I also follow a few in the online diabetes crowd. Six Until Me has been my number one go-to blog for smart, funny diabetes commentary with some real life (and New England life at that!) thrown in and her Twitter chat is equally entertaining and informative.

Today via SUM, I notice a fellow Twitter-er and PR Mom is going through the shock of her nine year old's Type 1 diabetes diagnosis. And while I don't know her or have any connection to her family, I honestly just feel overwhelmed with emotion reading her update about giving the first insulin injection.

When I look back and think about that one awful day and recall hearing Reagan's diagnosis, I see what a fog I was in then and for weeks afterward. In fact, it is very much the same emotional reaction that I had to 9/11 - just a numb nod of the head and a sense that I understood the impact, when in fact I had no idea how hard it would hit later.

So I can't offer any brilliant advice - practical or otherwise. But I will offer that a child's strength and courage are amazing and one can find all they need to go on right there.

Monday, February 2, 2009

The Real Groundhog Day

With Pittsburgh and Punxsutawney dominating today's sports and "Dear-God-When-Will-Spring-Get-Here?" news, I for one am happy to see the calendar flip to February because that means Truck Day's coming.

For the uninitiated, this is the glorious day each year when a semi pulls up alongside Fenway and several hours later heads toward I-95 S with a belly full of hats, bats, balls, and double bubble. Shadow or no, the march toward Opening Day will take a giant leap forward on Friday.

Saturday, January 24, 2009

Camelots in my Kitchen

There is blue sky visible today - quite a change from the last few weeks. The sunlight shining in through the windows highlights with no uncertainty the fact that my house needs a good scrubdown. So this morning after coffee, I put the Jimmy Buffet Live at Fenway in the Bose, unleashed my inner clean freak and got to work. (Side note - Brad and I were at that show in 2004 and saw Pedro pitch and Scott Kazmir's Fenway debut the next night. It wasn't pretty. I think TB hit a homer off Petey's first pitch of the game.)

Skip forward to second cup of coffee. I'm sitting at the bar looking out the window and spacing and I notice the two black and white framed photos that are on opposite sides of my dining room windows. The one on the left is a photo I took in Hyannisport of boats at the pier. The one on the right is a gorgeous photo of a snowy park in Chicago at night with skyscrapers in the background. Just an interesting coincidence to note...

Wednesday, January 21, 2009

One-worder is really two words...

More fun with memes, courtesy of the boss. This one requires one word answers. And that just goes against my nature.

1. Where is your cell phone? desk
2. Your significant other? home
3. Your hair? blonde
4. Your mother? facebooker
5. Your father? sweet
6. Your favorite thing? babybooks
7. Your dream last night? Flexeril
8. Your favorite drink? Champagne 'n Chambord
9. Your dream/goal? happykids
10. What room you are in? study
11. Your hobby? writing
12. Your fear? evil
13. Where do you want to be in 6 years? here
14. Where were you last night? YMCA
16. Muffins? FIRE!
17. Wish list item? Type1DiabetesCure
18. Where you grew up? Austin
19. Last thing you did? cook
20. What are you wearing? gymgear
21. Your TV? Bravia
22. Your pets? Siamese
23. Friends? sure
24. Your life? blessings
25. Your mood? goofy
26. Missing someone? SistahTara
27. Car? TL
28. Something you’re not wearing? chiponshoulder
29. Your favorite store? JCrew
30. Your summer? Narragansett
31. Like someone? usually
32. Your favorite color? turquoise
33. When is the last time you laughed? tonight
34. Last time you cried? Hmmm?
35. Who will resend this? unsure
36. One place that I go to over and over? Fenway
37. One person who emails me regularly? stepdad
38. My favorite place to eat? Smith&Wollensky
39. Why you participated in this survey? whynot?
40. What are you doing tonight? homework

Monday, January 19, 2009

The Nurse Will See You Now

Massachusetts has been floating a proposal to combat obesity because it is a drain on public resources (agreed) and as part of this plan, wants to mandate BMI testing of all public school children. Whoa Trigger.

Hey - I've been accused of a liberal bent, but this is sending even me into fantasies of fortifying a shack in the hills and assembling a militia.

Department of Health Commissioner John Auerbach states, "no parent need worry that their child will be teased as a result of the process." My immediate response is that he must living on another planet. I'd like to hear how they plan to marry this with the school counselors' Anti-Bullying curriculum, which is also big in Texas. (No pun intended - but it's a good one, huh?)

Now, lets set jokes aside about my adopted state's reputation as a somewhat out of touch commune. Am I overreacting here? Because the idea of my kids having to line up for body fat measurements in school strikes me as an invasion of privacy.

Sunday, January 18, 2009

Day by Day.....by Day by Day

Three new things we learned today. Or last Monday, to be exact.

To increase the Levemir - by 3 units. Seems like a huge jump, but it has made a big difference.

To inject Novolog prior to eating. OK - who knew? Maybe we missed this during the hospital instruction or perhaps it was inferred or maybe it is a law of the universe and clear to everyone that only idiots would calculate the carbs and dose after the meal. Anyway, this is apparently a key to tighter glucose control and I'm a little torqued that we somehow missed this for almost 2 years. Anyway, yes - this works much better, too.

My kids are wicked smart. That does not mean that just because they can perfectly understand what I tell them or teach them that they need maximum knowledge. In trying to teach Miss R about insulin resistance or the need to care for her feet, I am putting too much on a fragile 11 year old psyche. Our Joslin counselor said, "I think you have to look at the big picture, but she's not ready for that. She only needs to be thinking about how to manage her most recent blood check." Schooled. And thank goodness.

Tuesday, January 13, 2009

Carb Free: This Rice is an Alright Vice



Now that Jim’s in the Hall and we had a Joslin appointment yesterday, this seems like a perfect time to reprise blogging, which is apparently tracking the same as my workout habit – feast, then famine.

While Remy and Don rule the booth, Rice is the greatest sports commentator behind the desk. This guy is a bonafide star. His analysis is sometimes surprising, sometimes funny and the fashion is second to none. Oh, and apparently he was quite a moonshot hittin’, green monster mastering left fielder, too. (I love those crazy left field hitting machines.) Having spent his entire career with the Sox and continuing with the team in various roles since retirement, I predict we’ll see #14 hanging soon in Fenway. Congrats to the baseball writers for finally getting this one right.

And though Reagan’s attention span is more suited to Nick sitcoms than 9 innings of baseball these days, she definitely has a memory suited to players and stats, past and present. She was about 8 when she watched Fever Pitch and piped up, “Hey, there’s Jim Rice!” Proud moments in parenting…