Eighteen months ago, had someone asked my view on having a child with a chronic, life-threatening condition, I would have shuddered. "God that's just too awful to contemplate." Now, I know it's awful and around the clock I think about it, try to manage it and do my absolute best to lessen its burden on her body and mind. The thought that there may not be a cure for her is just one of many too awful things to entertain.
So I think I'm like a lot of parents who supress all these fears, tamp 'em down and keep them from bubbling up too often. After all, you just cannot live without hope. It's impossible; hope and faith. It may be a long, hard dusty row to hoe, but even if it takes forty years I really do think we'll finally see the promise.
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